{"id":7887,"date":"2024-09-13T15:04:42","date_gmt":"2024-09-13T15:04:42","guid":{"rendered":"https:\/\/dailywashingtoninsider.com\/index.php\/2024\/09\/13\/adekunle-gold-on-sickle-cell-advocacy-its-time-to-learn-my-voice-people-are-dying\/"},"modified":"2024-09-13T15:04:42","modified_gmt":"2024-09-13T15:04:42","slug":"adekunle-gold-on-sickle-cell-advocacy-its-time-to-learn-my-voice-people-are-dying","status":"publish","type":"post","link":"https:\/\/dailywashingtoninsider.com\/index.php\/2024\/09\/13\/adekunle-gold-on-sickle-cell-advocacy-its-time-to-learn-my-voice-people-are-dying\/","title":{"rendered":"Adekunle Gold on sickle cell advocacy: \u2018It\u2019s time to learn my voice \u2013 people are dying\u2019"},"content":{"rendered":"<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxkhibjg000v7lpecl59aosg@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            Award-winning Nigerian singer Adekunle Gold rose to international fame when his debut album \u201cGold\u201d reached number seven on the Billboard World Charts. Since then, the 37-year-old has released four more albums, amassing hundreds of millions of streams worldwide.    <\/p>\n<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxki96z200023b6j9qdwl4tg@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            Behind the scenes, however, he has been quietly battling sickle cell disease, an inherited blood disorder that leads to abnormally shaped red blood cells, causing severe pain, anemia, and potentially life-threatening complications. It affects children who inherit two copies of the sickle cell gene, one from each parent.    <\/p>\n<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxki96z200033b6jp069zuna@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            The disease is most prevalent in Africa, which accounts for 66% of cases worldwide, according to the World Health Organization. Nigeria bears the highest burden, where as many as 150,000 babies are born with sickle cell disease annually \u2013 the most of any country.    <\/p>\n<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxki96z200043b6jq2duux77@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            Adekunle Gold first wrote of his woes with sickle cell disease in 2022 in his song \u201c5 Star.\u201d Now, he is readying himself for a long-term commitment to advocacy, announcing the establishment of the Adekunle Gold Foundation, which will focus on addressing the needs of children battling sickle cell disease on the African continent.    <\/p>\n<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxki96z200063b6jqp4ywz3b@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            <em>This interview has been lightly edited for clarity and length.<\/em>    <\/p>\n<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxki96z200073b6jgu9sb5be@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            <strong>Larry Madowo: Why are you speaking up about <\/strong><strong>s<\/strong><strong>ickle<\/strong><strong> cell disease now and especially being very aggressive about this awareness?<\/strong>    <\/p>\n<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxki96z200083b6jlou4f7oa@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            <strong>Adekunle Gold:<\/strong> I just really got the courage to come out and speak about it. You know, a lot of people can\u2019t share their stories like I can. I was writing the song \u201c5 Star\u201d and reflecting on my life, the journey, and how I\u2019m a miracle. I was reflecting on that song, and I thought, maybe it\u2019s time to learn my voice. People are dying, people are going through it. People can\u2019t afford basic things that they need to sustain their health, and if the international organizations are not doing anything about it, it\u2019s time to force their hands to do it.    <\/p>\n<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxki96z200093b6jmm51wzw7@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            <strong>Larry Madowo: What challenges have you had to overcome while living with <\/strong><strong>s<\/strong><strong>ickle<\/strong><strong> cell?<\/strong>    <\/p>\n<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxki96z2000a3b6jrbzadzzw@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            <strong>Adekunle Gold:<\/strong> I constantly put myself in situations that made me sick as a child. For example, doing strenuous activities as a child that I was not supposed to do and there were always consequences, you know? But I always knew that I didn\u2019t want this thing to define me. So, if it means that I need to exercise more, take my drugs, eat well, rest well, and take more water, then I need to do that always.    <\/p>\n<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxki96z2000b3b6jm487y6af@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            <strong>Larry Madowo: Are there any memorable things that you\u2019ve come through during your advocacy work when people are not even aware of what they\u2019re facing?<\/strong>    <\/p>\n<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxki96z2000c3b6jtzigutg4@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            <strong>Adekunle Gold:<\/strong> Just speaking up about it on social, I realized that a lot of people are ignorant about it. This is something that I inherited, and you\u2019re trolling me for it. So, you realize people don\u2019t even know these things. I just need more people to be aware.    <\/p>\n<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxki96z2000d3b6jb0l6gadu@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            <strong>Larry Madowo: What are some of the barriers to receiving proper care for <\/strong><strong>s<\/strong><strong>ickle cell patients in West Africa? In Nigeria?<\/strong>    <\/p>\n<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxki96z2000e3b6jc36acrh4@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            <strong>Adekunle Gold:<\/strong> Listen, people don\u2019t have money, bro. The last outreach I did people came to Lagos to take drugs, to check their BP (blood pressure), to check their children all the way from Ilorin [300 kilometers away from Lagos]. And I\u2019m like, this is insane. We don\u2019t have facilities where you can just be in your place.Other countries like the UK and Canada have policies for sickle cell. Where it affects us the most, we don\u2019t have (accessible care). People can\u2019t afford to buy folic acid and folic acid is the smallest of things that you should be able to get.    <\/p>\n<div data-uri=\"cms.cnn.com\/_components\/map\/instances\/clxkihuym000m3b6j7abmbm8r@published\" class=\"map\" data-mapbox-enabled=\"true\" data-mapbox-access-token=\"pk.eyJ1IjoiY25uZGlnaXRhbCIsImEiOiJja21mOG9qZXkwMDdhMnVtcnl3OWwxcHhxIn0.edemYdT0TKm7F8Wf2Y5zUA\" data-longitude=\"4.544392299999998\" data-latitude=\"8.537335600000006\" data-zoom=\"5\" data-markers=\"W3sibGFiZWwiOiJMYWdvcyIsInN0eWxlIjoiY2FsbG91dCIsImxhdGl0dWRlIjo2LjUyNDM3OTMsImFsaWdubWVudCI6IlJpZ2h0IiwibG9uZ2l0dWRlIjozLjM3OTIwNTd9LHsibGFiZWwiOiJJbG9yaW4iLCJzdHlsZSI6ImNhbGxvdXQiLCJsYXRpdHVkZSI6OC41MzczMzU2MDAwMDAwMDYsImFsaWdubWVudCI6IlJpZ2h0IiwibG9uZ2l0dWRlIjo0LjU0NDM5MjI5OTk5OTk5OH1d\" data-id=\"clxkihuym000m3b6j7abmbm8r\">\n<div id=\"clxkihuym000m3b6j7abmbm8r\" class=\"map__container\"><\/div>\n<div class=\"map__caption\">        Ilorin is approximately 300 kilometers from Lagos, Nigeria      <\/div>\n<\/div>\n<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxki96z2000f3b6jamwho4tc@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            <strong>Larry Madowo: What do you hope to achieve by adding your voice to this, by speaking up publicly?<\/strong>    <\/p>\n<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxki96z2000g3b6j635fem3b@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            <strong>Adekunle Gold:<\/strong> I want everybody to, first of all, be aware of it and know how to treat people that have it.&nbsp; I also want people to understand that it is important to check your genotype.    <\/p>\n<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxki96z2000h3b6j7xrbv3e6@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            <strong>Larry Madowo: <\/strong><strong>You\u2019re the embodiment that you can live <\/strong><strong>with sickle <\/strong><strong>cell and have a full, healthy, and powerful life. Will you keep talking about this in your music and your public appearances with your shows?<\/strong>    <\/p>\n<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxki96z2000i3b6j33m2kkat@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            <strong>Adekunle Gold:<\/strong> I started the foundation, so you know it\u2019s real. It\u2019s game time from now on. So, I am constantly learning my voice, constantly doing outreach, and constantly fighting for it. I want the international community to pay attention just like they do to other diseases. Sickle cell is a big one. It affects my people the most, and I want the world to do something about it.    <\/p>\n<p class=\"paragraph inline-placeholder vossi-paragraph-primary-core-light\" data-uri=\"cms.cnn.com\/_components\/paragraph\/instances\/clxki96z2000j3b6jfon6bm8u@published\" data-editable=\"text\" data-component-name=\"paragraph\" data-article-gutter=\"true\">            <em>Watch Larry Madowo\u2019s full interview with Adekunle Gold on <\/em><em>African Voices Changemakers.<\/em>    <\/p>\n<\/p>\n<div>This post appeared first on cnn.com<\/div>\n<p><\/p>\n","protected":false},"excerpt":{"rendered":"<p>Award-winning Nigerian singer Adekunle Gold rose to international fame when his debut album \u201cGold\u201d reached&hellip;<\/p>\n","protected":false},"author":1,"featured_media":7888,"comment_status":"closed","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"footnotes":""},"categories":[23],"tags":[],"class_list":["post-7887","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-world"],"_links":{"self":[{"href":"https:\/\/dailywashingtoninsider.com\/index.php\/wp-json\/wp\/v2\/posts\/7887","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/dailywashingtoninsider.com\/index.php\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/dailywashingtoninsider.com\/index.php\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/dailywashingtoninsider.com\/index.php\/wp-json\/wp\/v2\/users\/1"}],"replies":[{"embeddable":true,"href":"https:\/\/dailywashingtoninsider.com\/index.php\/wp-json\/wp\/v2\/comments?post=7887"}],"version-history":[{"count":0,"href":"https:\/\/dailywashingtoninsider.com\/index.php\/wp-json\/wp\/v2\/posts\/7887\/revisions"}],"wp:featuredmedia":[{"embeddable":true,"href":"https:\/\/dailywashingtoninsider.com\/index.php\/wp-json\/wp\/v2\/media\/7888"}],"wp:attachment":[{"href":"https:\/\/dailywashingtoninsider.com\/index.php\/wp-json\/wp\/v2\/media?parent=7887"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/dailywashingtoninsider.com\/index.php\/wp-json\/wp\/v2\/categories?post=7887"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/dailywashingtoninsider.com\/index.php\/wp-json\/wp\/v2\/tags?post=7887"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}